Privacy policy

At Crohn's & Colitis UK we take your privacy seriously.

In order to operate effectively and efficiently, Crohn’s & Colitis UK needs to collect and use information about the people with whom we work and receives personal and sensitive data from individuals - which may include details such as: name; address; date of birth; occupation; illness and date of diagnosis; ethnicity; donation and volunteering history.

We understand that as the custodian of personal information it is very important to handle your personal information securely, appropriately and in compliance with the law.

Crohn’s & Colitis UK is the controller for the personal information we process, unless otherwise stated.

Our Data Protection Compliance Lead is Andrew Adie, Director of Finance and Corporate Services. For details of responsibilities held relating to data protection please see our Data Protection Policy.

Our Privacy Notice tells you what to expect us to do with your personal information when you make contact with us.

We’ll tell you:

  • why we are able to process your information
  • what purpose we are processing it for
  • whether you have to provide it to us
  • how long we store it for
  • whether there are other recipients of your personal information
  • whether we intend to transfer it to another country, and
  • whether we do automated decision-making or profiling.


The Not Every Disability is Visible 2019 campaign activities have been developed in partnership with, and funded by, Janssen-Cilag Limited.